Category Archives: kelly

Relay for Life Pictures

On May 5th my family participated in the American Cancer Society’s Relay For Life! Late last month I put out a plea for friends {see plea here}, family and complete strangers to help put an end to cancer and join Team Benson in the Relay For Life.

We were absolutely astounded by the love and support that came pouring in.  We initially asked for $1,000, but we quickly surpassed that goal and set a new goal of $3,500!  Currently we are $65 a way from our goal.  (If you would like to donate and help us reach it click here!)

I unfortunately missed the event, as I had prior plans, but I wanted to make sure to document the race and follow up with everyone who donated and is interested.

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Oh and I forgot to mention Team Benson earned the most money of any of the teams there!! 

WAY TO GO!!

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Mini-Breakdown

Ever since Kelly’s diagnosis of cancer I had been pretty strong. I had a couple of negative-anxiety ridden posts following the initial diagnosis but overall I felt strong and in control. Well that all ended last night.

I had an okay day, went to the laundromat and got all my laundry cleaned (still need to put it away ugh!). After Jaime and the girls came over and we hung out.

They left around 5pm and my mood began to deteriorate.

Around 7pm I lost it. Tears, anger, frustration all came to a boiling point. I felt completely out of control.

I don’t think I’ve ever cried like this. Worst part was I caused my mom to lose it too and then I really couldn’t stop crying once we both were on a roll.

Cancer sucks.

What sucks even more is this out of control – crazed person I feel I’ve been lately. Part of me is happy I had my mini-breakdown last night. I let down my guard and the dam came crashing down.

I once again feel in control and best of all, all my tears have been shed….at least for a few more days!

Home Again

After another three day stay in the hospital Kelly was discharged this afternoon! We’re thrilled to *hopefully* have the hospital stays behind us. Now we focus on getting Kelly healed from her surgeries.

Our family would like to thank the amazing nurses, nursing assistance and staff at Evergreen Hospital who made Kelly (and really our whole family’s) stay pleasant and as comfortable as possible.

After a crazy few days, well actually weeks now, things seem to be calming down and hopefully will get back to normal. I for one am exhausted and at 7:56pm I’m already in bed ready for a good night’s sleep!

As my mom said in a text blast this afternoon, “this is the end of chapter 1″. That sounds like an excellent plan indeed.

A Bump in the Recovery Road

After a busy weekend for both myself and Kelly things went downhill again last night.

This past weekend I had a big craft fair with Julia in Sequim (best one yet!!) and Kelly had her big Relay for Life event this past weekend.  I will blog more about each event in the next few days, but I wanted to give a quick Kelly Update (non-evil or Cori-ifying of course) for all our friends and family who are following this crazy journey right along with us.

Sounds like my parents and Kelly slept most of the day yesterday after their all-night event (don’t worry my dad got a hotel room for Kelly so she could rest comfortably but still be close to the action).  On my way home I called and checked in with my family to see what was going on.  My dad answered the phone and I learned that Kelly had developed a fever and they were going to try to get her in at an urgent care to make sure she was okay.  Didn’t seem overly exciting, until my dad suddenly goes “Holy Crap” when my mom informed him her temp was 103.5*.  He immediately hung up the phone and they headed into Evergreen’s Emergency Room.

Once at the hospital they did a CT Scan (came back clear), chest xray, blood work (came back fine) and started her on antibiotics to begin fighting the infection brewing inside her.   They discovered her lung is slightly collapsed and they are watching for possible pneumonia.  They admitted her last night for observation.

While all this was going on I was up in Camano waiting for news.  Luckily I was exhausted after a busy day and was able to go right to sleep and not get brain locked and worry.  I went back to sleep and when I awoke I had text updates waiting for me.  I slept well, nothing was wrong and Kelly was fine….well other than her various problems ;)

The doctor just came in and informed us that Kelly will be staying another night. 

As I write this Jaime and I are sitting in the dark of Kelly’s hospital room listening to the buzzing of machines.  Kelly keeps rolling over and saying odd things to us…pretty sure it’s the medication, she’s kind of loopy and out of it :D Hehe!

 

Kelly’s Home!!

She was sprung this afternoon!

Now for her to get back to normal …

Surgeries, Hospital Stays & Brain Locks

I promised Kelly I wouldn’t use my blog for evil … aka to solicit sympathy for myself on her behalf.  That will be difficult, but I shall try.

Let’s see….how can I write this and make it have nothing to do with Kelly….that’s nearly impossible, but I shall try to leave her out as much as I can….

My sister had surgery yesterday to remove several organs, one of which was her appendix that they think may be the source of the cancer, which is EXCELLENT news!  The surgeon was also able to zap (yes that’s a clinical term in my book!) 24 tumors that were lying on the outside of her liver!  More EXCELLENT NEWS!

I’m getting off track, to much talk about she who must not be named…let’s talk about me….

Kelly’s surgeries were planned for sometime yesterday afternoon between noon and six o’clock.  I had class in the morning through afternoon so that helped keep me occupied.  However around 2pm I began to get antsy and sent my mom a text asking if Kelly had gone back to surgery.  She responded back a few minutes later saying she’d been in surgery since noon.

Noon.  That was now over two hours ago.

I tried to continue to concentrate on my math class, but my mind continued to wander back to her surgery started over two hours ago, what’s gone wrong?

This is never a good sign for my brain to go into brain lock.

About the time I was going into a brain lock panic my mom texted me and said the surgery went well and Kelly was in recovery.  Instant relief.

After class I headed over to the hospital and was able to make it before she got out of recovery.  The nurse had prepped us that she was in good spirits and joking, so we were expecting an alert Kelly.  That was not what we soon saw.  The Kelly that rolled out of recovery room looked near comatose, in a ton of pain and beyond nauseous – an extremely vicious duo.

I hung out in her room with her and my mom for much of the evening, she slept while we watched.  The hourly vitals were the highlights of the evening.

This morning I spent working on an essay that I had to turn in tonight.  My reward for finishing was a trip to the hospital to visit my parents, Kelly and eat a delicious dinner in the hospital cafeteria.

As I was leaving they had gotten her hematocrit levels back after some testing and they were way to low (18 – normal is 30+), so she was waiting for a blood transfusion.  While writing this I started to get antsy that I couldn’t reach anyone and once again my brain went into brain lock.  After about 5 panicked calls to my mom’s cell phone someone finally answered.  I’ve never been so happy to hear a voice in my life.  Turns out her hematocrit had dropped again and she got really sick. She now is in the process of having the transfusion and it sounds like perked (and pinked) up quickly. 

I still haven’t talked to my mom, so I’m waiting for a call back from her to get more details.  I’m feeling better, still a little bit shakey and anxious, but better then I was a few minutes ago.

I now understand why my mom says “I feel better when I’m with her”.  I would feel better too, I would know what was going on.  Sitting at home is hard, especially when you have a brain locked brain like mine :(

 

American Cancer Society: Relay for Life

Relay for Kelly

Next weekend my family and several close friends will be walking on behalf of Kelly from 3pm Saturday until 8am Sunday.

If you feel touched and wish to donate to our team, please click HERE.

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Click HERE to donate!

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A New Norm

The recent cancer diagnosis for my sister has finally began to sink-in.  No longer to I find myself wanting to run away from everything.  It’s a nice feeling.

I remember a couple days after I got home from Arizona having a cry fest in the family room with my parents.  Sobbing I asked, “When will this become normal?  When will this no longer seem so overwhelming? When will we be able to sit and have a conversation without tears?

In fact, just last week I had a really low moment.  I had just had a huge fight with my parents and Kelly, was overwhelmed and honestly just done with everything.  I don’t think I’ve ever been that low before in my life.  I actually went as far as tweeting (and texting my poor friends!) Don’t think anyone would care if I was gone.

Can you say deep depression?!

At the time, it seemed like the possibility of life ever being normal again would never happen. 

To be honest, we’re not back to normal.  Most likely we never will be the Benson family we were just one month ago.  However, we’re healing, beginning to move on and learning how to get on with life again.

I actually do not remember the last time I cried!  That for me is a big step! 

Another big step is I’m blogging.  It has become apparent to me that writing is great therapy for myself.  It feels good to write.  It gets out feelings that have been pent up and hid inside of me.  I feel better after I write.  Total (or almost!) relief.

I’m feeling good.  I’ve started the process of blogging about my trip to Arizona, so stay tuned for more posts to come! 

I think I’m back….I think the old Cori is finally feeling normal again!   Well except for this one super hard class I’m taking this quarter….but the end is in sight, c’mon June 10th and Graduation!

Run

All I want to do is run. Run fast and not look back.

I am okay being the coward who runs away from fear.

I am okay not facing it and pretending everything is okay.  Really I am.

However, I don’t have that option and can’t run.

I’ve been home from Arizona for 24-hours+ and have known about the cancer now for five days.  It still doesn’t feel any easier.

Kelly is out partying with her friends and I cannot stop crying.

Alex is completely okay with it (or so she acts) which makes me feel even more silly for being an emotional wreck.

My mom has (for the most part) stopped crying, at least in front of us.  However, I saw my dad cry for the first time in my life yesterday and that broke my heart.

We’re all hurting.  We’re all lost.  We’re all confused.

We jokingly talk about death, reminding Kelly what we want in her will, etc. It takes the edge off a bit…for the moment we feel normal.  Humor is getting us through this.

The love and support that has been outreached to Kelly and my family is mind boggling.  Everyone is being so nice, kind and giving.

The phone is ringing off the hook (as it rings now) and I just have to let it ring, I’m not ready to tell the story all over again. I’m not ready to cry again.

It amazes me with all the love and support we’re receiving how I can still feel so depressed and alone.  Ask anyone, I am anything but a depressed person.  I’m normally outgoing, loud and obnoxious are normal choice adjectives people associate with me.  Lately I don’t want to talk to anyone, I want to just lay in bed.  That feels good.

*Sigh* the phone just rang again.  Thankfully Alex answered it.

Meeting up with my mom and Alex for lunch at our favorite restaurant, then out for some retail therapy after.

I plan on running away again today.  Maybe tomorrow I’ll be more ready to face reality.

Devastating News

Midway through my vacation in Arizona I was hit with bad news that my little sister has cancer. This sent me into a downward spiral as I tried to grasp what was going on.  Below you’ll see the letter that we sent out to our friends about the cancer and how Kelly is doing. 

I’m home now, but feel very behind in the grieving process and very much alone.  It’s funny everyone I’ve ever met is reaching out to me and my family and yet I still feel alone.  I’m going back to school today for the first time and hopefully that will distract me a bit.

The good news is Kelly is in no immediate danger and we have lots of time to make the right choice.

Thank you to everyone who has called, texted, emailed, facebook’d, tweeted and sent virtual love, support and prayers.

I would like to especially thank Julia and Alec for being great stand-in parents when I received the devastating news so far from home.  I really appreciate it.

XOXO, Cori

Email to our friends:

Dear friends,

We received some very difficult news this past week and now that we have a little more information, I wanted you to be aware of what’s happening.  First, let me tell you that the Benson family is doing okay and that we are taking a breath and putting together a plan.

Kelly, who is 23, was diagnosed last week with a rare form of cancer.  We had our first meeting with her oncologist yesterday and received confirmation of the seriousness of the situation and a mixed prognosis.

The bad news is that her cancer is stage 4 and incurable and because the tumors are extensive and not in a mass, it is inoperable. Chemotherapy is also ineffective against this cancer, so our treatment options are limited.

It’s called metastatic carcinoid cancer.  The only place they can find evidence of it is in her liver, but it originated from somewhere else and they can’t seem to find the source.

However, the good news is that this is a slow growing cancer, so we have time.  How much time is the focus of our next step.  The other good news is that the tumors are incredibly small, so small in fact that they didn’t show up on the radioactive scans.  They did however show up on the MRI, but no other cancer could be found which is also good news.

So the bottom line is that we have time.  It’s very serious, but not so urgent that we need to move into treatment right away.   She’s probably one of the youngest people to ever get diagnosed with this thing since it’s generally a cancer that affects people 55+.  (Sounds like Kelly, huh?)

The plan is to run a few more tests to see if we can find the source, and then begin the vigil of benchmarking the changes of the tumors she has.  So every couple of months they will rescan her to see if there is growth.  After 6 months or so, we’ll be able to get a sense of how slow or aggressive it might be.  That will give us a better handle on the amount of time we have to figure out how to treat this.

As of now, we’re going to hold off on any intervention and start looking around the country for the research hot spots.  Her biggest chance to beat this is in the world of future drugs, so the slower growing this monster is, the longer we’ll have for a breakthrough, which we fully expect to happen.

The other good news is that Kelly is symptom free.  A lot of times, this cancer isn’t detected until people are experiencing the affects of what is called carcinoid syndrome with a lot of unpleasant symptoms.  Kelly isn’t experiencing any of this, so we’re thrilled about that.  They found these tumors accidentally while removing her gall bladder a few weeks ago.  That was a blessing to catch it when we did.  Kelly is doing remarkably well and in good spirits.  As most of you know, Kelly has a wicked funny sense of humor and has been drawing on it all week.  As long as we’re near her, we’re fine.

If you are interested in reading more about metastatic carcinoid cancer, please check out the Carcinoid Cancer Foundation‘s website: http://www.carcinoid.org/.

We welcome your prayers and your positive thoughts and will keep you in the loop as our journey progresses.

Fondest regards,
Linda, Bob, Cori, Kelly & Alex

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